The addqol questionnaire is a conditionspecific outcome measure suitable for. Diabetes in longtermcare and skilled nursing facilities. Evaluating healthrelated quality of life in type 1 diabetes. Since there is a lack of specific intervention concepts for this patient group, a selfmanagementoriented group program diamos diabetes motivation strengthening was newly developed and evaluated in a randomized trial. A plan for people at high risk of or living with diabetes 20152020 the plan sets out a vision that.
Objective to validat ae diabetesspecific quality of life scal and toe assess its psycho metric properties in a large sample of patients with type 1 diabetes. Oct 24, 2015 there is no consensus on the effect of gestational diabetes mellitus gdm on healthrelated quality of life hrqol for the mother in the short or long term. Diseasespecific measures of quality of life qol have the advantage of frequently being more responsive and clinically useful than generic qol measures which do not focus on any specific condition, while generic measures have the advantage of enabling comparisons of qol burden and treatment benefit across diseases 4, 5. There are two recognized problems with the chinese dqol. Diabetesspecific tools included the audit of diabetesdependent quality of life, diabetes quality of life, appraisal of diabetes scale ads, and diabetes health profile. Development of diabetesspecific quality of life module to be in. What is diabetesspecific quality of life qol, how important a concept is it, and. Validation of a diabetes specific quality oflife scale for patients with type 1 diabetes article pdf available in diabetes care 215. Outcome tools for diabetesspecific quality of life ncbi. Quality of life qol is a frequently employed construct in studies of children with diabetes, and is critical for evaluating health outcomes in clinical trials and for decisionmaking in health care. Also, these measures do not distinguish items for generic and diabetes specific hrqol. How is diabetes specific quality of life scale abbreviated.
Generating an epub file may take a long time, please be patient. Assessment instruments for a healthrelated quality of life in. A bank of 49 disease impact items was constructed from previouslyused descriptions of health impact to represent ten frequentlymeasured quality of. Study population was consisted by 258 subjects with t2d attending diabetic outpatient clinics of. Pdf to validate a diabetesspecific qualityoflife scale and to assess its psychometric properties in a large sample of patients with type 1. The scale is able to distinguish between patients with different treatment and dietary regimens and to detect social inequities. This study was aimed to develop a diabetesspecific quality of life questionnaire module dmqol to be in conjunction with the. Questionnaire on stress in patients with diabetesrevised qsdr, wellbeing enquiry goes diabetics wed, diabetesspecific qualityoflife scale dsqols, diabetes 39. Diabetesdependent quality of life addqol and affecting. Distal technologies and type 1 diabetes management the.
The american society of colon and rectal surgeons clinical. This study was aimed to develop a diabetes specific quality of life questionnaire module dmqol to be in conjunction. In this study we examined hrqol in a group of women who had gdm in the index pregnancy 2 to 5 years previously and compared it to a group of women with normal glucose tolerance ngt in the index pregnancy during the same time period. Validation of a diabetesspecific qualityoflife scale for. Research design and methods to assess the quality of diabetes care in a populationbased study, a representative sample of 684 patients with type 1 diabetes was examined. Reliability and validity of a diabetes quality of life measure for the diabetes control and complications trial dcct. Validation of a diabetesspecific qualityoflife scale. The instrument is developed to measure the quality of life of type 1 diabetes patients. A comparison of global versus diseasespecific quality oflife measures in patients with niddm. Questionnaire packets including the dqol, measures of current diabetes selfcare behaviors, and demographic and health characteristics were mailed to 1,080 adults with. The performance of the questionnaire was assessed using data from three.
Pdf validation of a diabetesspecific qualityoflife scale for. Diabetes quality of life dqol instrument has been widely used to measure quality of life among diabetes patients. The contentious issue however is whether factors associated in literature with quality of life apply to diabetic patients in uganda. Second, developing a diabetesspecific questionnaire that functions in. Diabetesspecific quality of life dqoly, effect on diabetes. Oct 14, 2016 the latest national diabetes statistics report 2014 estimates that, in the united states, 25. Development and validation of the diabetes quality of life. Pdf development of diabetesspecific quality of life module to be. The diabetes specific quality of life scale dsqols is a new instrument with 64 items, of which 10 focus on treatment goals, 10 on treatment satisfaction, and 44 on the perceived burden of diabetes. Quality of life qol has been increasingly recognized as an important factor in outcomes assessment of individuals with diabetes.
Quality of life dqol questionnaire for use with both type 1 and type 2 diabetes. Ada standards of care psychosocial care of people with. Quality of life expresses how people see the positive and negative aspects of their lives subjectively and it. Patients at the outpatient clinics of a university hospital completed measures of generic health status sf12, diabetesspecific quality of life audit of diabetes dependent quality of life addqol, and depressive symptoms center for. Adherence rating scales this document describes some features of the more widely used of the currently available adherence rating scales. Health related quality of life two to five years after. Although numerous healthrelated quality of life hrqol instruments are available for patients with diabetes, the length of these measures may limit their feasibility to routine practice. Development of diabetes specific quality of life module to be in conjunction with the world health organization quality of life scale brief version whoqolbref chungying lin1, tsungying lee2, zihjie sun3,4,5, yiching yang3,5, jinshang wu3,5 and huangtz ou2,6,7 abstract.
The aim of the present study was to measure diabetes dependent qol and affecting factors in patients with t2d. Thus, it is well documented for people with type 1 diabetes that the. This study examines relationships between patient reported outcomes pros and clinical outcomes in type 2 diabetes mellitus t2dm. Performing physical activities regularly not only prevents chronic diseases but also improves healthrelated quality of life kidkindl. Results general and diabetes specific quality of life was high at baseline and remained stable, whereas treatment satisfaction improved p of 1,9. Validation of a diabetesspecific quality of life scale for patients with type 1 diabetes article pdf available in diabetes care 215.
The objective of some of the earlier tools was primarily to allow the patients subjective experience of treatment with antipsychotic drugs to be quantified barbera et al, 2006. The diabetes quality of life dqol measure is a 46item diabetes specific quality of life instrument. Understanding and assessing diabetesspecific quality of life. The effect of school based exercise practices of 9 11 year. Other specific types of diabetes monogenic diabetes syndromes diseases of the exocrine pancreas, e. As can be seen, the scale is similar in content and format to the qsdr. Diabetes complications negatively affect quality of life as do depression, aging. Quality of life, health status and clinical outcomes in type. Pdf adaptation of diabetesspecific qualityoflife scale for. Chur, switzerland, harwood academic publishers, 1994, p. A revised version of diabetes quality of life instrument. Pdf validation of a diabetesspecific qualityoflife scale. Quality of life of people with diabetes diabetes 39 j.
Development of diabetesspecific quality of life module to. Aug 30, 2012 introduction the aim of this study was to measure healthrelated quality of life hrqol in iranian people with type 2 diabetes mellitus using two different measures and examines which sociodemographic and diabetes related characteristics are associated with better quality of life based on a nationally distributed sample. Standardizing diseasespecific quality of life measures. Pdf validation of a diabetesspecific qualityoflife. Dsqols is defined as diabetes specific quality of life scale rarely. Patientreported reported patient o outcome measurement u. Quality of life of diabetic patients is not a new concept in literature. To design and test the reliability and validity of a brief, treatmentfocused version of the diabetes quality of life dqol questionnaire for use with both type 1 and type 2 diabetes. The original english version of the dqol has been translated into chinese after cultural adaption, and the chinese dqol has been validated in the chinese diabetic patient population and used in diabetes related studies. Measurement of the construct varies in specific dimensions but includes aspects of physical, emotional, and social wellbeing. Dsqols stands for diabetes specific quality of life scale.
The diabetesspecific qualityoflife scale dsqols addresses accurately the differences between various forms of therapy in diabetes mellitus dm 1 and. Objective subclinical depression is one of the most frequent mental comorbidities in patients with diabetes and is associated with a poorer longterm prognosis. Validation of a diabetes specific quality of life scale for patients with type 1 diabetes. Validation of a diabetesspecific qualityoflife scale for patients with type 1 diabetes article pdf available in diabetes care 215. Dsqols diabetesspecific qualityoflife scale acronymfinder. Development and validation of the diabetes quality of life brief. The development of quality of life instrument for indian. The impetus for the focus on qol stems, in part, from the diabetes control and complications trial dcct, 1 but also from the increasing awareness of behavior and quality of life as central outcomes in health care and health policy. To develop both a revised version of the diabetes dietrelated quality of life ddrqolr scale that can be applied to patients with nephropathy and a short form of the ddrqolr. To assess the quality of diabetes care in a populationbased study, a representative sample of 684 patients with type 1 diabetes was examined. Diabetesspecific qualityoflife scale how is diabetes. Diabetes specific tools included the audit of diabetesdependent quality of life, diabetes quality of life, appraisal of diabetes scale ads, and diabetes health profile.
A total of 184 outpatients with type 2 diabetes were asked to complete the selfadministered ddrqolr scale to confirm its psychometric properties. Health related quality of life in patients with type 2. The assessment of healthrelated quality of life hrqol has been. Development of a diabetes dietrelated qualityoflife scale. Dec 15, 2015 diabetes mellitus type 2 t2d is a chronic metabolic disease with a great impact on health status and quality of life qol in terms of physical, social, and psychological wellbeing. This study aimed to develop a revised version of dqol instrument that incorporated issues of redundancies in the items and strengthen the basis of validity of the instrument. Item reduction and validation of the chinese version of. Healthrelated quality of life measurement in type 2 diabetes. Diabetes related distress problem areas in diabetes paid 20 item measure of diabetes specific distress measuring emotional distress and burden associated with diabetes.
Development of a diabetes dietrelated quality of life scale eiko sato, mhlthsc, rn 1 yoshimi suzukamo, phd 2 mitsunori miyashita, mhlthsc, rn 1 keiko kazuma, phd, rn 1 objective the purpose of this study was to assess the reliability and validity of the diabetes dietrelated quality of life ddrqol scale, which is a measure of the in. To document the development and evaluation of the quality of life disease impact scale qdis, a measure that standardizes item content and scoring across chronic conditions and provides a summary, normbased qol impact score for each disease. To validate a diabetes specific quality of life scale and to assess its psychometric properties in a large sample of patients with type 1 diabetes. Related quality of life measure for children with epilepsy cheqol has both child and parent. Objective to validate a diabetesspecific quality of life scale and to assess its psychometric properties in a large sample of patients with type 1 diabetes. Diseasespecific healthrelated quality of life instruments. Although numerous diseasespecific hrqol measures additional file 1. Jul 05, 2016 health related quality of life can be seen as a newfound focus in diabetes research, treatment and care, according to experts at the symposium, beyond a1cwhy quality of life matters, presented on june 11, 2016, during the american diabetes associations scientific sessions in new orleans. Linguistic and psychometric validation of the diabetesspecific. Adults with type 1 and type 2 diabetes diabetes distress scale dds 17 item questionnaire measuring diabetes specific distress in4 domains. A shortform version was developed, based on two methods. The aim of this 2year research project was to develop an instrument specifically designed to assess the quality of life of people with diabetes. Health related quality of life of diabetic pima indians.
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